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- What
You Need to Know About Waiting Lists
A
variety of state and federal requirements must be satisfied by the
nursing facility prior to admission or shortly thereafter. For
example, a Medicaid pre-admission evaluation (PAE), to determine
medical eligibility, typically will be conducted before admission. A
comprehensive patient assessment, to determine a plan of care, is
also completed for each patient. The formal care plan is then
prepared by the attending physician, a registered nurse and other
staff members who will be involved with the patient’s care. This
care plan is updated every three months, or more frequently if the
patient’s condition changes.
Other
requirements must be met at admission to determine the suitability
of the environment for patients and to preserve patients’ rights
after they are admitted and receiving medical care.
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Mental
Health Screening |
Federal
law mandates that nursing homes determine prior to admission whether
a patient has any mental illness or mental retardation. This rule
applies to all patients in facilities that participate in the
Medicare and Medicaid programs. The screening is referred to as
PASARR, which stands for Pre-Admission Screening and Annual Resident
Review.
A
PASARR is conducted for the benefit of both patient and facility, as
it determines whether the facility is the best source of treatment
for the patient. If the initial evaluation demonstrates the patient
has any degree of mental illness or mental retardation, a more
involved evaluation follows to determine whether the patient needs
special services that cannot be provided in a nursing home.
If the
second evaluation indicates a need for special services, the patient
and family will be assisted in finding an alternative setting for
the required care. Patients whose mental conditions change during
their stay in the facility will be retested.
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Advance
Directives |
All
patients have the moral and legal right to make decisions regarding
their care and treatment in a nursing home, hospital or other health
care facility. The value and risks of medications and procedures
must be explained clearly to patients, and their rights include the
right to refuse treatment.
Sometimes, of course, patients are unable to make their own health
care decisions due to illnesses or other reasons. If possible,
patients can make their treatment wishes known in advance through
the use of advance directives.
Over
the last few years, Tennessee has taken significant steps to
simplify the health care decision making process for its citizens by
changing advance directives laws and rules.
In
2004, members of the state Legislature passed the Health Care
Decisions Act, which was carefully designed to make it easier for
Tennesseans to express their end-of-life wishes through advance
directives and for health care providers to honor those wishes. The
Health Care Decisions Act not only updated living wills and durable
powers of attorney for health care (DPAHC), it also broadened the
spectrum of forms individuals can use.
Any
existing forms already completed such as living wills and DPAHCs,
remain valid under the Health Care Decisions Act and can be used to
follow a patient's health care wishes; however, new forms have been
adopted by the state of Tennessee. These include the Advance Care
Plan form, the Appointment of Health Care Agent form and the
Physician Orders for Scope of Treatment (POST) form.
The
two-page Advance Care Plan form serves a similar function as the
former living will. It allows individuals to tell their doctors how
they want to be treated if they are terminally ill or permanently
unconscious. Advance Care Plans may also be used to tell doctors to
avoid life-prolonging interventions, such as cardiopulmonary
resuscitation (CPR), kidney dialysis or breathing machines. Other
special instructions or limitations may also be included in the
form.
The
Appointment of Health Care Agent form, on the other hand, is similar
to the former durable power of attorney for health care (DPAHC). It
allows individuals to name one individual and one alternate to make
health care decisions for them should they become unable to make
decisions for themselves.
Both
the Advance Care Plan and Appointment of Health Care Agent forms are
completed by individuals while they have the capacity to make health
care decisions. Ideally, this happens in advance of an illness or
disability.
The
Physician Orders for Scope of Treatment or POST form replaces the
old do-not-resuscitate (DNR) form and represents the most noteworthy
change resulting from the new law and new forms. It is more
comprehensive than either the old in-facility or state Emergency
Medical Service (EMS) DNR forms.
The
POST form is completed by an individual’s physician or, at the
physician’s direction, by another health care provider, such as
facility staff. The patient or his representative does, however,
sign the POST form. It includes a section to record a patient’s
choice on cardiopulmonary resuscitation, i.e., “Resuscitate (CPR)”
or “Do Not Attempt Resuscitate (DNR/no CPR).” It also includes
sections to record preferences when a patient is not in
cardiopulmonary arrest such as medical interventions, antibiotics
and medically-administered fluids and nutrition. Since this form is
approved by the state, EMS will accept the new POST form as a
replacement for the old EMS DNR form.
Written
advance directives can still be notarized, but individuals may
choose simply to have the documents signed by two witnesses, one of
whom is not a relative or entitled to any part of the individual’s
estate. Once advance directives are created, individuals are urged
to keep copies of the document in a safe location and give other
copies to family members, health care agents and physicians.
What You Need to
Know About Waiting Lists
During
the nursing facility selection process, you are likely to discover a
policy unique to Tennessee – patient wait lists. In fact, you will
find wait lists at most Tennessee facilities that accept Medicaid.
The practice of maintaining prospective patient wait lists
originates from a 1990 court case, Linton v. Commissioner,
which resulted in a federal court ruling mandating
Medicaid-participating facilities admit patients on a first-come,
first-served basis.
As the
name implies, wait lists mean beds may not always be immediately
available for patient admission. When a bed is vacant, facilities
must consult the wait list to determine who is next in line to be
admitted. Wait list size varies greatly among facilities and changes
daily. It is important to understand that whether the list has two
or 200 names, it is not an accurate reflection of when any patient
will be admitted primarily because many people on the wait lists
simply are not yet in need of nursing home care or they have been
placed in another facility. There may be 200 names on the waiting
list, but there also may be 10 empty beds that can’t be filled from
the list.
In
addition, the regulations include instances when a patient may be
admitted according to circumstances beyond first-come, first-served.
The most common example of this is admission to the nursing facility
directly from the hospital due to medical need. Also, because
nursing facilities place only patients of the same gender together
in each room, admission may depend on whether the patient is male or
female. Admission preference also may be given in cases requiring
intervention by the Department of Human Services Adult Protective
Services; in limited instances of patient transfer from another
facility; as well as when a nursing facility patient has been in the
hospital.
Although having to place your name on a wait list may seem
discouraging, Linton regulations exist to protect consumer
rights and help individuals plan ahead for when long-term care
services will be needed. If you are told by facility staff that your
admission may be delayed by the wait list, please remember the
facility has no choice in complying with the law.
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